My sister's courage and strength has given me the inspiration to dedicate my time in raising awareness for TTP through "A Journey to Heal".
I am like many individuals who did not know very much about this disease. After experiencing the various hospital visits with Carmela, my
sister-in-law, I realized how serious this disease can be. Although we saw Carmela suffer, we also saw the strength, courage and determination
that she had and this became infectious to the rest of us. This has now become a cause that our family has taken to heart including educating
our kids. Nicholas and Erika have also taken it upon themselves to help this cause and we are so proud of them. If this cause can help to
strengthen our family values then Carm's goal to support this cause is well worth it.
Toni Vecchiarelli
We are grateful for being given the opportunity to participate in this noble cause. We pray that our efforts will ease the pains and sorrows of
both friends and strangers. Together we can beat this.
John & Anna
I was diagnosed with TTP in September 2008. I am very lucky that I have the continuing support of my husband,
mother, family, friends and coworkers. Not to mention my awesome plasmapheresis nurses Patti and Megan at
Saint Michael's Hospital who helped me every step of the way to remission. However, as 1 of only approximately
45 people in Ontario affected by this rare blood disorder yearly, I felt isolated. Moreover, as I do not know
what initially triggered the TTP and what may bring it on again, I felt that I had lost control over my own body.
It was not until my first committee meeting that I was truly reenergized to my old self. Working with other
TTP patients and their support networks, to raise funds to speed diagnosis, ease the treatment effects and even
find a cure has enabled me feel control over my future again.
Sydney Bryant Kodatsky
A Journey to Heal was founded in February 2006. This non-profit organization consists of volunteer committee members that dedicate their time to organize various events during the course of the year. Our first gala event took place in June 2006. This fun-filled event consisted of great food, live entertainment, silent auction and much more. With the support of our committee, guests and sponsors we were able to raise much needed funds in support of TTP (Thrombotic Thrombocytopenia Purpura) for Princess Margaret Hospital.
The Apheresis Team at Princess Margaret Hospital!
Susan Butten-Loccisano Gery Sandeva